Ectodermal Dysplasia Society

A Cheque for £ 500 were presented to Gillian Squires on behalf of E D S ( Ectodermal Dysplasia Society

The donation is greatly appreciated

Ectodermal dysplasia is not a single disorder, but a group of closely related conditions of which more then 180 different symptoms have been identified.

Each syndrome usually involves a different combination of symptoms, which may range from mild to severe, such as ;absence or abnormality of hair growth ; absence or malfunction of some or all teeth, inability to perspire which cause overheating; impairment or loss of hearing and / or vision; frequent infections due to immune system deficiencies and ,in some cases,the inability to bacteria from entering the body through cracked or eroded skin; absence or malformation of some fingers or toes ; Cleft lip

and / or palate ; irregular skin pigmentation.

In addition, sensitivity to to light; respiratory; problems lack of breast development; and/ or a host of other challenges may be expected.